Champions of Hope: Niekro Aneurysm & AVM Foundation Year-End Campaign

Champions of Hope:
Niekro Aneurysm & AVM Foundation Year-End Campaign

Our Year-End Goal

We aim to raise $20,000 by December 31st to deepen our impact and improve lives.

You can double your impact, thanks to Musa & Tom Mayer’s generous $10,000 matching gift.

$50: Help connect patients and families with support and resources.

$100: Help sustain patient advocacy and educational programs.

$250: Help advance the Foundation’s research and patient-support mission.

The Niekro Aneurysm & AVM Foundation is a 501c(3) nonprofit organization. Our tax identification number is 42-1740818. All donations are tax-deductible to the extent allowable by law.

A Story of Hope

You have the power to be a Champion of Hope today.

In January of 2017, Beth’s life changed in an instant when a devastating hemorrhagic stroke left her unable to walk, speak, or use her hands. After months of rehabilitation and years of hard work, she rebuilt her life one step at a time. Through the Niekro Aneurysm & AVM Foundation, Beth found a community that understood her journey.

Today, she leads her own virtual support group, offering hope and connection to survivors across the country. Beth’s story is a powerful reminder that no one should have to face recovery alone. Brain aneurysms, AVMs, and stroke can change lives without warning.

The Niekro Aneurysm & AVM Foundation connects patients and families with vital support and resources while funding research to advance future treatments. Together, we can help more survivors find hope, connection, and a path forward.

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Our Impact This Year

From funding impactful medical research to expanding our support programs and raising awareness, each contribution has directly impacted the lives of those affected by aneurysms and AVMs. Together, we have fostered a stronger community, empowered countless individuals, and paved the way for innovative treatments and resources. Your support has been invaluable in driving this progress, and we look forward to continuing this important work together in the coming year.

13,600

Connected over 13,600 patients and families with vital support networks, offering essential resources and a community of understanding

4 Research Grants

Funded four comprehensive medical research grants advancing treatment and innovations for aneurysms and AVMs

5 Scholarships

Funded five support group scholarships to provide resources for activities and refreshments to help survivors and caregivers connect.

74+ Support Groups

Connected survivors and caregivers with peer support and resources across the U.S. and Canada

311 5K Participants

Raised awareness of aneurysms and AVMs while honoring survivors and remembering loved ones.

Looking Ahead

By increasing research funding to support an additional grant, we can accelerate the development of new treatments and innovative therapies. Expanding our patient programs will allow us to reach more patients and families nationwide, providing essential support through online communities and virtual groups. Lastly, adding mental health resources will address the emotional and psychological challenges faced by patients and their families, offering comprehensive care and fostering resilience

Advancing Medical Research

Continue to fund promising research that advances our understanding of aneurysms, AVMs, and stroke and moves us closer to better treatments and improved patient outcomes.

Patient & Family Support

Continue to grow our network of support groups, online communities, and educational resources so more patients and families can find connection and guidance.

Strengthen Community Support

Expand support group scholarships to help groups in our network provide activities, supplies, refreshments, and transportation that bring survivors and caregivers together.

Raise Awareness and Save Lives

Expand awareness efforts to improve recognition of aneurysms and AVMs, encourage education, and connect more people with potentially life-saving information.

Voices of Change

“The Niekro Foundation is amazing. They run the Teen AVM support group that I attend monthly. Through this group, I've made amazing friends who understand my experience since having my stroke.”

"The Foundation’s efforts to raise awareness and fund research make a real difference, and being part of that movement gives me hope. It’s empowering to know that there’s an organization out there fighting for people like me and helping others understand what AVM survivors go through.

“As a neurosurgeon specializing in complex cerebrovascular disorders, I have witnessed firsthand the profound physical, cognitive, and emotional toll that brain aneurysms and arteriovenous malformations (AVMs) inflict on patients and their families”

“The Niekro Foundation has benefitted me by connecting with their teen support group. I finally met kids the same age as me, who went through same things as me, and who get it!"

The Power of Your Donation

Your donation is more than a financial contribution. It’s a lifeline for families like Beth’s. It
fuels critical medical research that could lead to new treatments, strengthens our online
communities and virtual support groups, and reminds patients and families that they
don’t have to face these challenges alone. It brings hope for a future with better
treatment options and improved outcomes.

Thanks to Musa & Tom Mayer’s generous matching gift, every donation will be doubled, up to
$10,000. Your gift can make twice the impact for patients and families who need it most.

Thank you for your support! For questions, please contact Elizabeth at [email protected]

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