I was 24 when my life changed forever. I had no idea I was living with an AVM—until one day, I passed out unexpectedly. Thankfully, my soon-to-be husband was home and called for help. I spent 10 days in the hospital, where doctors discovered that my AVM had ruptured and was inoperable. That moment marked the beginning of a new chapter—one filled with uncertainty, fear, and the daily reality of managing stroke symptoms.

Living with an AVM is not easy. But I’ve learned that strength isn’t about having all the answers—it’s about showing up, even when it’s hard. It’s about finding joy in small victories and leaning on the people who walk beside you. My story is one of survival, resilience, and hope—and I share it in honor of those still searching for theirs.

Because of my AVM, I was told I couldn’t safely carry a child. That news was devastating. But we didn’t give up hope. We embarked on a surrogacy journey—one filled with emotion, courage, and faith. And now, we have a beautiful 10-month-old baby who we celebrate every single day. That child is a living reminder that love finds a way, even through the hardest circumstances.

Connecting with The Niekro Foundation has been incredibly meaningful to me. Their support and advocacy for AVM and aneurysm awareness have helped me feel seen and understood as a survivor. One of the most special ways they’ve impacted our community in Midland, Michigan is through the annual 5K race they sponsor each fall. It’s something we all look forward to—not just for the event itself, but for the sense of unity and purpose it brings.

The Foundation’s efforts to raise awareness and fund research make a real difference, and being part of that movement gives me hope. It’s empowering to know that there’s an organization out there fighting for people like me and helping others understand what AVM survivors go through.

To anyone walking through the storm of an AVM or aneurysm diagnosis—please know this: you are not alone, and your life still holds so much beauty.

My advice? Let yourself feel everything—grief, anger, hope, joy. Lean on the people who love you. Celebrate the small victories. And never underestimate the power of community. Organizations like The Niekro Foundation remind us that we are seen, supported, and part of something bigger. They shine a light in the darkest places.

You are more than your diagnosis. You are a survivor. And your story matters.